What I’ve learned preparing for and returning to Houston... 1. I had lost perspective on the gains Luke has made. There is something about having him in this same hotel room, the airplane, the hospital waiting room. There is something about those places that qualify his growth in ways that Home could not. The furniture in the hotel room was all 'safe enough' to stay in the original place. We don't have to pad the floors. We don't have to put a towel down in restaurants to protect Luke's head. The nurses ask questions like, Now, can he still not use his hands? or Does he still fall all the time and bump into things? or How is his eye contact? This place forces me to zoom out and in doing that brings me to this... 2. I, come to find out, may be a mess. To be continued on that one. I have tried to write a few times, but, whew, I think I need a bottle of wine and my girlfriends before I am ready to even try. 3. This place makes me brave enough to be scared. It forces me to confess that I would actually like to know if he will ever talk. It makes me say out loud that there is a twitch that he is doing that makes me nervous. It makes me ask what the future miiiiggght look like. But I know that being scared doesn't mean that you aren't brave and it also doesn't mean that you lack faith. Tomorrow we will ask the hard questions. We may get tough answers. Even tougher is the possibility that we may not get any answers at all. The uncertainty of TSC is nothing special. Everyday we all wake up and have no idea what the world has in store. There is discomfort in this but anytime discomfort there is growth. Once we push through that muddled mess, our faith and love is what remains and courage stands by our side.
11 Comments
The Byrds
12/12/2017 03:54:07 pm
LOVE! ❤
Reply
10/12/2018 04:48:37 pm
As a parent, I understand all the worries and fears that you have because your son is not really into his healthiest state. It may take a lot of years before the treatment will be done, but I am encouraging you to be strong because it's really necessary. I can feel that you are a strong woman, and there s a need for you to practice it in this phase of your life. Your son needs you to be stronger for him. I am hoping for some positive news about him!
Reply
Terri
12/12/2017 04:25:32 pm
Tears of joy. Thank you for allowing us to share in your journey. Love you so much.
Reply
Lisa
12/12/2017 04:43:06 pm
He has come so far in just a year. I hope you get some postitive results and answers. Can’t wait to see him and Sam on Tuesday’s again. I have miss my buddies.
Reply
Abby
12/12/2017 06:23:45 pm
Everyone at home is proud of Luke and you for being such brave warriors. Your struggles, defeats and victories bring hope to so many people! As you tread past the dark in the valley of shadows, you teach us all how to run through hell and out the other side with your candor and valor! See you soon!
Reply
holly cross
12/12/2017 07:28:22 pm
Awsome video!! I love seeing Luke happy and S miling. Stephaile u are the most wonderful mom in the world. Every day is a good day that he is seizure free. We love u and the boys and want nothing but happiness for u. Keep up the posts. Love u
Reply
Doreen
12/13/2017 02:47:38 pm
❤️😘
Reply
Karen Hupp
12/14/2017 05:10:09 pm
Luke’s smile is darling. My heart goes out to you and Luke. Prayers that his results will be positive in the coming weeks. Merry Christmas to all of you. Love you
Reply
Rose Koerber
12/15/2017 06:55:41 pm
Amazing Luke, He is so cute!! And I Loved the videos! I'm so happy for all of you!
Reply
12/16/2017 08:17:15 am
The video is beautiful and gives me tears of JOY! His smile is priceless. I hope you were able to connect with John. Merry Christmas and God’s blessings to all your
Reply
2/26/2019 02:22:33 am
There is noticeably a bundle to know about this. I assume you made certain nice points in features also.
Reply
Leave a Reply. |
AuthorMother of two amazing little boys, one who just happens to be a TS warrior. Categories
All
Previous Posts
May 2018
|