My memory is terrible. Thank goodness. I had forgotten, until returning to the TS Clinic in Cincinnati, how bad things used to be. As Luke galloped around today, flapping and giggling, in the waiting room I flashed back to a memory from last year. I remember shuffling behind Luke, holding the back of his shirt to catch him before he hit the floor when the seizure would take hold. I remember running into the hallway holding Luke, yelling at Dr. Franz to hurry up if he wanted to see Luke seizing with the hopes that him seeing the episode in person would unlock some secret to our freedom. I remember coming in for a check-up and bringing an overnight bag just in case they admitted us. My mind has held these memories captive, protecting me, guarding me, until it knew that I was ready. I was able to remember today because time is magical. Ten months. Ten months of smiles and eye contact and hand holding and hugs that don't end with the tonic-clonic rigid pulsing that I had grown so accustom to. Ten months of memories made at school and therapy and church and our new home that don't get washed away multiple times a day by the storm. Ten months of being a son and brother and grandchild and friend, not just a patient. I once thought time would heal by helping us forget, but time is what allows us to feel strong enough to remember.
18 Comments
Brenda
10/11/2017 09:00:12 pm
I love you! ❤️
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Marita Witten
10/14/2017 08:05:35 am
Prayers for another good check-up and if you see John give him a big hug for me. Be sure and let him know you are coming, because I know he loves to see you all.
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Beth Govoni
10/12/2017 04:13:15 am
Beautiful. Your words, the way you express them and most of all, your story.....all beautiful.
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Pam Lumley
10/12/2017 04:47:34 am
Makes me cry every time! Your awesome! Prayers and love!❤️
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Byrds
10/12/2017 05:14:35 am
Happy, happy, joy, joy! Love you guys! ❤
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Terri
10/12/2017 07:25:42 am
So happy for you. Love all of you. ❤️
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Rose
10/12/2017 08:09:05 am
Beautiful ❤️❤️ You are an amazing mom and person 🎉💕😇❤️👑
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Teshea
10/12/2017 09:22:50 am
First of all - everyone should be woken up the way you woke up Sam :) Kiss an Angel good morning :)
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Teresa
10/12/2017 03:42:18 pm
It’s amazing the change in Luke.
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Patty.smith
10/12/2017 05:37:35 pm
I am so moved by your post
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Chris
10/12/2017 07:06:59 pm
So happy Luke is continuing to improve as each day goes by. I can't imagine the relief you must feel. Your picture is beautiful with those precious little boys!
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holly cross
10/12/2017 08:25:37 pm
Stephaine u are amazing!! Hearing Luke and all his firsts makes me very happy We love u all very much. .
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Rosie
10/13/2017 03:30:22 am
Love you! You are still the most amazing, brave woman, mother I know! 💖😘
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Megan Heier
10/13/2017 11:11:22 am
Amazing update! Thank you for sharing!! ❤️
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Cheryl Hobson
10/13/2017 12:18:22 pm
Thank you for keeping us updated on your family. You are an amazing woman of God.
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Aunt Margie
10/19/2017 10:06:37 am
So so glad to see Luke's progress. I think your blog name should be changed to Leasing Angels for you truly are one for Luke.
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Kristin
12/10/2017 06:36:00 pm
Beautiful ❤️
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AuthorMother of two amazing little boys, one who just happens to be a TS warrior. Categories
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May 2018
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