Leasing an Angel
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Happy xmas (war is over)

12/17/2016

27 Comments

 
Out of ICU and back to our home-sweet-home, the 10th floor. Luke did amazingly last night. He ate, he drank, he played, he fed me Cheerios... and he slept. Which also means I slept, albeit in a room with two other beds and hourly vitals. Hey, I will take 4 hours any way I can get them.

Luke did vomit when we got on the floor and is just feeling crummy. It actually makes me feel better that he is showing some post-op symptoms because, to be real honest, I wasn't convinced they may have forgotteb to do brain surgery with as chill as he was last night. At least now, even though he feels poorly, I know that he is reacting normally for a child undergoing two brain surgeries in one week.
We really like normal.
As my man-child lays on top of me I try to soak in every smell of his vomit breath, the feel of his breathing, the feel of his filthy hair.
Yesterday was big, but today is monumental. Today we see.
I lay here and battle the confidence I want to carry that the surgery was a success. I want to put good thoughts out there and have faith. But then I also remember that Luke has tuberous Sclerosis and the seizures may come back. I want to be prepared. I keep up my guard, ready for the surprise attack.

As he starts to wake, he startled and stretches. Every time he jumps, my heart jumps with it ready to press the button to alert the nurse that the seizures have begun again...

I wonder if that will ever stop and then I laugh to myself.

I'm a mom, duh, I've been warned, I will never stop. We will always be ready to fight for our babies. No matter if they are 3 years old or 32. It's never a question. We are always ready for battle when we love so fiercely. Our armor never gets put away.

​I guess sooner or later you just get strong enough to not notice it is on.
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27 Comments
Kelly Craig
12/17/2016 08:38:57 am

Love ya girl. Prayer being sent for rest of the heart body and mind. You both are doing fantastic. #butfirstgangstarap

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Abigail
12/17/2016 03:39:09 pm

So proud of you both! Prayers, love and courage sent on the wind to your little home away from home. 💕

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Dawn Holiday
12/17/2016 08:42:10 am

Even in death it's on. My beautiful boy walked into Heaven on October 7, 2014. He was 29. As sure I am that he's okay up there with his big brother and Savior, he left three children who I don't see often enough to know they 're okay. If I could turn back time, the one thing I would do with all of them is hold them longer. Don't know about the vomit breath but just to feel their warmth in my arms... I do it now with his sisters and nephews and nieces and every chance I get with his babies. Stay alert, Momma, but don't waste a single second worrying about tomorrow. Today is perfect. Tomorrow will be too. Thinking of, praying for, and loving you all...

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Laura Flanagan-Cantrell link
12/17/2016 08:44:25 am

Absolutely the best news this morning. No the armor never gets put away trust me on that one as a mother of a 34 years old son I know. Your a strong woman so proud of the way you fight for Luke. God be with you both give your mom a hug from me. I love you all.

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Brenda
12/17/2016 08:54:14 am

Thank God! Take a minute, an hour, a day, to just say thank you! Your prayer warriors did it. Celebrate! God listens to our prayers! You are blessed!

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Jackie Harris
12/17/2016 08:56:58 am

The vomit breath cracked me up, but I get it! So glad to hear that he had a good night and you got some rest. It's true, so I'm learning. Once a mom, always a mom. We fear everything for them, good or bad, it's what we do.

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Byrds
12/17/2016 08:57:18 am

Sportin' our Team Luke shirts today with hearts full of love and prayers going up! Love y'all!!

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Pat Millman
12/17/2016 09:04:27 am

What great news! Thanks for keeping us updated. You know our prayers are with you, Patty, and all of your family. You are an amaaaazing Mom.

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Doreen
12/17/2016 09:10:49 am

Now to begin prayers of thanks! Your words touch the heart of every parent, no matter the age of our children. They run especially true for any parent with a child needing/or has had surgery. It leaves you on guard or at attention for a long time. But you count every good day a blessing! Enjoy all the wonderful blessings ahead for you and Luke!

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Terri
12/17/2016 09:20:42 am

Dance!!!

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Donna Taylor
12/17/2016 09:20:54 am

Such good news this morning. Continued prayers your way.

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Stephanie Book
12/17/2016 09:47:18 am

Continued prayers!

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Carolyn Johnson Gambill
12/17/2016 10:55:13 am

Such good news! You don't really know me, I'm Kirks sister in law/Nancys sister and have been follow Luke's (and your) journey and keeping you in my thoughts and prayers. I'm sending positive thoughts and prayers your way and wishing you all the best now and in the days and months to come. Keep the faith!
Most Sincerely,
Carolyn

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Rémy
12/17/2016 11:57:05 am

I think about you guys every single day. I believe in the power of prayer, so I will continue to throw out a #teamluke up to the heavens, knowing my voice will be heard. Love, Rémy

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Stacey King
12/17/2016 12:00:08 pm

I am so glad for good news. Stephanie your a great mom , strong and willing to fight for your children. Luke has your spirit. I will continue to pray for Luke and you. Be strong , keep your faith and I pray for each day there will be more good news.

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Linda Aldridge
12/17/2016 12:03:58 pm

Continued prayers. Best news yet..

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John
12/17/2016 12:15:52 pm

That sounds like wonderful news! Continued prayers and faith. Luke is definitely endured a lot in 3 years, 3 weeks and these 3 days. You as well. He feeds off of your strength and support. Godspeed.

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Lynn
12/17/2016 01:01:16 pm

So glad to hear all is well. Continued prayers my sweet friend! God is great! Love you!

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Peg Weedman
12/17/2016 01:02:12 pm

You don't know us either - Brent Weedman's parents. We continue to pray for you and your special angel. Thankful for good new today.

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Pat Mann
12/17/2016 01:22:58 pm

So sweet of your family to share with all of us that know you. I'm sure your grandma Aline is smiling today. Praying for miracles and looks like they have already started

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Mary Beth
12/17/2016 03:41:33 pm

Love that for Luke and you!!!! You all continue to amaze me. Prayers continuing your way Stephanie, hugs to you also.

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Kay Hargesheimer
12/17/2016 04:32:10 pm

Prayers still coming for that sweet boy and his wonderful family. Continuing to pray no more seizures. Christmas blessings to all!!

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holly cross
12/17/2016 05:23:58 pm

You and Luke are so awsome! I just love you Stephaine and am so proud of u. Luke is a tough kid and yes it is pretty amazing that he had 2 brain surges in a wk. We love u and are sending lots of prayers to u.

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Cheryl
12/17/2016 05:27:44 pm

Thanking God for good news today and thanking God for you his wonderful and loving Mama.

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Mary Pat Boone
12/17/2016 07:10:12 pm

Thank God! We had the Waiz Christmas party today and we all prayed for Little Luke. So happy for you guys I can't put into words. I know Aline is dancing in heaven

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Joan
12/18/2016 08:22:02 am

Wonderful news. Prayers are answered and hearts are light. Hurry home and praise the birth of Jesus and praises for Luke's healing. God is good. Merry Christmas

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Mary shanahan
12/18/2016 09:35:56 am

I am in awe of everyone's strength. Prayers will continue for Luke and the family. Merry Christmas to everyone!!

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    Mother of two amazing little boys, one who just happens to be a TS warrior. 

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