The dawn has arrived.
After digging through 30 episodes, Dr. Masters JUST (8:50pm) finished analyzing Luke's "remarkable" seizures and came in to deliver the news that YOU were assured we would be getting. I, on the other hand, am not going to lie, for a few hours of the painful waiting today I started to prepare myself for other all the other scenarios and possibilities... but we don't have to go to Hypothetical Land this evening.
The large "typical" seizures are very clearly STILL coming from the tuber on the right parietal lobe .
THE PLAN IS A GO*
*Nothing is in stone yet, obviously. We still have to meet with Dr. Curry and Dr. Weiner Monday and confirm the plan. They could feel differently about the readings. Or they may want to monitor, with depth electrodes, other places in his brain that have started to get a little sassy since we have been off of the Afinitor in preparation for the surgery (it is an autoimmune suppressant). But honestly, you could stick a depth electrode in my eyeball right now. I am so relieved and thankful and (I'm going to go there)...excited.
You guys... we may be getting a break.
Like this may be really happening...
Ok, that is all I am allowing myself to do. I already possibly jumped up and down with mom and we maaaay have high-fived. Time to reel her back in. I have too romantic of a brain to let it start snowballing out of control with possibilities...
Stay in the moment.
Enjoy the morning's warm sun.
We made it through another dark and stormy night.
I will sit on my proverbial porch and sip my real life coffee. I will listen to the silence and feel the stillness in my heart. I will notice that even though the load we carry is great, it is just a little lighter today. I will take a moment to appreciate the promise of this new dawn.
Mother of two amazing little boys, one who just happens to be a TS warrior.