 The dawn has arrived.
After digging through 30 episodes, Dr. Masters JUST (8:50pm) finished analyzing Luke's "remarkable" seizures and came in to deliver the news that YOU were assured we would be getting. I, on the other hand, am not going to lie, for a few hours of the painful waiting today I started to prepare myself for other all the other scenarios and possibilities... but we don't have to go to Hypothetical Land this evening. The large "typical" seizures are very clearly STILL coming from the tuber on the right parietal lobe . THE PLAN IS A GO* *Nothing is in stone yet, obviously. We still have to meet with Dr. Curry and Dr. Weiner Monday and confirm the plan. They could feel differently about the readings. Or they may want to monitor, with depth electrodes, other places in his brain that have started to get a little sassy since we have been off of the Afinitor in preparation for the surgery (it is an autoimmune suppressant). But honestly, you could stick a depth electrode in my eyeball right now. I am so relieved and thankful and (I'm going to go there)...excited. You guys... we may be getting a break. Like this may be really happening... Ok, that is all I am allowing myself to do. I already possibly jumped up and down with mom and we maaaay have high-fived. Time to reel her back in. I have too romantic of a brain to let it start snowballing out of control with possibilities... Stay in the moment. Enjoy the morning's warm sun. We made it through another dark and stormy night. I will sit on my proverbial porch and sip my real life coffee. I will listen to the silence and feel the stillness in my heart. I will notice that even though the load we carry is great, it is just a little lighter today. I will take a moment to appreciate the promise of this new dawn.
26 Comments
Karen Hupp
12/9/2016 07:59:48 pm
My thoughts and prayers are with all Stephanie. God bless 💕
Patty mom
12/9/2016 08:01:54 pm
I am so proud of you Stephanie . For the mom and warrior you are. Luke is so lucky to have you! Watching you in action is a sight to behold.
Autumn McWilliams
12/9/2016 08:10:00 pm
So glad to hear this! Kylie added you and Lucas to our prayer jar tonight! ❤️
Brenda
12/9/2016 08:11:12 pm
Thank you for keeping us informed. Prayers are flowing like a river! Glad you could have one high five! One moment of relief! Praying for many more. I love you! ❤️
Bobbie
12/10/2016 10:49:15 am
Stephanie I'm so very proud of you for the strength and honesty you have shown your family is in my prayers love to all
Moving forward
12/9/2016 08:11:32 pm
Sweet dreams, sweet child of mine.
Pam
12/9/2016 08:51:30 pm
Prayers for another break of day and good tidings! Love and prayers!
Jim
12/9/2016 11:18:08 pm
Hugs to each of you and prayers going up. Luke is a blessed boy to have you as a mom!
Stacey King
12/10/2016 03:40:07 am
Stephanie, not only are you a strong your a great Mom. Luke is so blessed to have you as his Mom. Praying for all you.
Karen King
12/10/2016 03:53:05 am
Prayers for all! 🙏🏻🙏🏻🙏🏻
Lisa
12/10/2016 04:44:24 am
Now you can take a huge breath...let the hope and promise wash over you and soldier on. Sending you all the good positive energy!
Byrds
12/10/2016 04:50:02 am
High five and love from the Byrds...and Nathan sends you a huge hug! And big, dark lipstick kisses from Emma! <3
Jenny
12/10/2016 05:04:52 am
So thankful, Steph. We'll keep lifting y'all up!! 12/10/2016 05:08:00 am
Continued Prayers. I just started following Lukes life story. He is Blessed to have you for a Mother. God is always in control.
Linda
12/10/2016 05:08:07 am
Keep the high fives going. Being a warrior has not only helped Luke but also yourself. Prayers.coming your way. Many hugs to all of you.
Amy
12/10/2016 05:11:06 am
You don't know me , but my heart goes out to you in so many ways! I am a teacher and my daughter had uncontrolled epilepsy for years and I can relate to you in so many ways. Unfortunately, you have a much longer and harder journey than we had, our love and prayers are with you daily. Stay strong...you are such a wonderful mom! What a beautiful precious angel you have too love and care for-that smile in that picture has helped to light the hearts of many!
Uncle John
12/10/2016 05:17:32 am
Fabulous ... a great bit of news to start the day! We're praying for you all!
Linda
12/10/2016 05:27:30 am
Stephanie, thoughts, prayers, faith, hope and love. I'm cheering for Luke. You are simply amazing.
Abby
12/10/2016 05:31:04 am
Hope against hope! Stack it up. Pile it high! May God send his angels to watch over yours. We are all praying and standing with you!
Terri
12/10/2016 05:41:02 am
Prayers of praise and joy. Thank you, Jesus. So happy to hear this news! You are surrounded by prayer and love as the journey continues. ❤️
Smart pat boone
12/11/2016 02:00:23 am
Prayers for an abundance of high fives! 12/10/2016 07:04:21 am
Rounding up the troops for continued prayers. Keep the faith I love you sending hugs and kisses.
Mary Beth
12/10/2016 04:56:43 pm
Prayers will keep coming your way. God Bless all of you!
Pat
12/10/2016 07:42:37 pm
Prayers coming your way. Glad you are finding an answer. Hope all goes well.
Aunt Nancy and Uncle Kirk
12/11/2016 06:38:44 pm
So,so,so glad to hear this latest news, Stephanie. You are in our thoughts constantly and in our prayers. Sending you love and hope from Boston. Big hugs to you, Patty and Luke❤️❤️❤️❤️❤️ Leave a Reply. |
AuthorMother of two amazing little boys, one who just happens to be a TS warrior. Categories
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